A well intended action, vocation / calling or a sense of duty is a good thing — in any case. Is it not? I have doubted myself on endless occasions in my 11 years with Parkinsons… in my endeavours to help myself and others because of the inherent self doubt…

Sometimes, no matter how many tablets we swallow or how much ‘good advice’ we choose to listen to — some days are just shit living with Parkinson’s. A degenerative disease that is with me everyday. This is a poem of sorts about the bumps we hit along the way. Sorry…

A song I have written (i hope to record it soon) but the words mean a lot to me and I hope you find meaning in them too x Life takes its time sometimes All you can do wait Where it all begun For the times to come All you…

I believe patient experience is a priceless commodity that cannot be bottled, measured or prescribed..period. If you get asked to share your insight, experience or knowledge as a patient.. make sure you look after your wellbeing first, 8 years of sharing a lot of me in recent years has taught…

Having already had run-ins with two uncooperative services who are there to help — via a telephone call this morning — I wish never to talk on a ‘landline’ again — video call is better for me because my voice alone (without seeing me) is solely motionless or speedy, slurry…

Last night I had a dream of losing everyone and everything I love … this is nothing new for me. Why? Because Parkinson’s doesn’t ‘go to bed at night’.. rather, it just sits on your chest and pins you to the bed.. like my knob’ed of a big brother who…

I have ‘the kings speech’ syndrome. Pre-Parkinson’s brain ..I talked too fast but I spoke clearly and well. Before Parkinson’s took hold..I was teaching teenagers , I had over 100 kids under my care etc — parents etc — I was a multi — tasking, organized, ‘cool mr (s)gangster’.. don’t…

Alex Flynn was one of those people who knew ‘everyone’ and was never told ‘no’ when seeking interviews for his podcast, money to fund his own adventures (which would ultimately multiply by the thousands in donations to fund research into seeking a cure for Parkinson’s Disease )— or simply just…

Early or late …When I get in bed at night i know that it’s not gonna. be the sleep that I know my body needs … but rather a series of naps (if you like) each with the usual vivid dreams, bookmarked by the rude awakening of the usual tremors…