Mar 25Being a ‘tapehead’.. Music & MeSo after watching a documentary about the power of music in people with Alzheimer's, recomended by @kbinpgh, it made me think about my future self — when my Parkinson’s gets worse.. This is a clip from the documentary so you can understand my motivation for writing this post: You…Alzheimers3 min readAlzheimers3 min read
Nov 17, 2022A*Side / B**SideBoth sides of the story. “Sorry.. but I can’t come to work today because I… If you are a full bill of health..If you’re sat on the train, at your desk after the usual commute or you just got back home after the school run and you’re reading this right now, please stick with it and use your imagination.. …Parenting4 min readParenting4 min read
Oct 21, 2022Don’t feel blue.. we’re in this together.“I do not want to attend a conference full of old shaky people” is what I would have said to anyone who thought that meeting others ‘just like me’ after just 2 years with the disease (back in 2013- the 3rd World Parkinson Congress) in Montreal, Canada — would be…Parkinsons3 min readParkinsons3 min read
Aug 6, 2022We CAN be glorious!This is a tall tale. Something I made up.. out of my brain. But the material , the names and the faces are all in my head and are my daily spur — giving me strength daily through their kind comments and personal messages. …2 min read2 min read
Jul 15, 2022Medication anxietyYou had a bad day, a bad week and you took more pills that time because you were stuck, frozen at work, on the sidewalk or just needed to move and you know you’re gonna run short on Levadopa.. …Parkinson Disease2 min readParkinson Disease2 min read
Jul 11, 2022With these hands.. I got to..Last week and into the weekend I didn’t go far from my house.. but from my family home firstly.. I got to work my ass off at Parkinson’s UK, finishing a video project we at PUK in my shed/ office / man cave — that ‘we’ have done with NEXT…Positive Thinking3 min readPositive Thinking3 min read
Jun 12, 2022I’m gonna let my little light shine! What music means to me..The cliche is that music is my life. That music is all that matters. And I am that cliche and it is likely something we, as musicians and appreciators of music gathered here today, will have used to describe (in words) what music means to them at least once in…Music4 min readMusic4 min read
Jun 8, 2022Nocturnal ramblings#01: About choice, choosing etc I am an Apple geek.. owner of the original iphone in 2007..I have been an icloud hoarder of thoughts (756 Notes), emails (55,110), photos (44,940) and videos (7,354). …Parkinsons5 min readParkinsons5 min read
Apr 11, 2022You don’t need to have a degree, a doctorate or a phd to shape the future..Im sorry, but I don’t want to sit down, i dont want to be still, To be patient Or sit it out Made to feel like I’m no good to anyone Just sitting around waiting for god,Worldparkinsonsday2 min readWorldparkinsonsday2 min read
Apr 3, 2022April is Parkinson’s awareness month. Who’s with me?A well intended action, vocation / calling or a sense of duty is a good thing — in any case. Is it not? I have doubted myself on endless occasions in my 11 years with Parkinsons… in my endeavours to help myself and others because of the inherent self doubt…Parkinson Disease2 min readParkinson Disease2 min read